Media Partnership: An EU Ecosystem for Rare Diseases: The OD Expert Group proposals for navigating the challenges ahead [Promoted content]

Join us for an event that brings together a diverse group of rare disease experts to discuss and propose policy recommendations for improving the European legislative framework for orphan drugs. With a focus on collaboration and consensus-building, this event is meant to create a meaningful dialogue and help chart a path forward for a more effective legislative and regulatory framework, capable of addressing the needs of people with rare conditions and boosting innovation. Established in 2020, the European Expert Group on Orphan Drug Incentives (OD Expert Group) is a multidisciplinary and cross-functional expert group that brings together representatives of the broad rare disease community, including researchers, academia, patient representatives, members of the investor community, rare disease companies and trade associations. Our experts and representatives of the decision-making processes will explore ideas for navigating the challenges ahead, trying to address the question of how to create a resilient ecosystem for rare diseases. Organised by: The European Expert Group on Orphan Drug Incentives (OD Expert Group) Media Partner: EURACTIV