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2017

What Is Pompe Disease? Megan Crowley Gets Standing Ovation At Trump's Joint Address To Congress

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One of President Donald Trump's guests during his first major address to Congress Tuesday night was diagnosed with a rare genetic condition of Pompe disease when she was an infant. Megan Crowley's honor coincided with the annual Rare Disease Day.

Trump cited Crowley, now 20, as an inspiration for his administration to confront and defeat rare diseases such as Pompe disease.

"Today is Rare Disease Day, and joining us in the gallery is a Rare Disease Survivor, Megan Crowley," Trump said, prompting the entire audience in the Capitol to erupt in a standing ovation.















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